By helping parents and preemies grow and thrive together, our PreeMe+You health tools and pathways do the following to maximize each preemie’s quality of life:
PreeMe+You: Social Benefit Mission and Collaborations
Our research program for PreeMe+You collaborates with two academic hospitals:
The University of Chicago and NorthShore Health Systems.
Dr. Marin Arnolds is our PI at NorthShore Health Systems.
Marin Arnolds is a Neonatologist and clinical ethicist at NorthShore University HealthSystem in Chicago, IL. Her research focuses on the experience of parenting in the neonatal intensive care unit and also improving communication between physicians and parents before, during and after their infant’s NICU admission. She is also a mother of two children, and is inspired by each baby and family’s strength during their NICU admission. Dr. Arnolds is passionate about improving quality of life for preemies and their families, and draws on her own experience as a mother in the NICU to to her daughter (born 9 weeks early) to support the families under her care.
How did PreeMe + You come about and who has already used it.
The PMY web application has been tested in approximately 100 families between the two hospitals.
Parents were asked to first reflect on the readiness for mobile technology to learn about their health conditions and care. The survey used was the FIFRE, commonly used to ask patients about how they get and use health information.
Second, parents were asked to track their quality of life as related to the health status of their babies using the Peds Quality of Life Impact Survey.
Our results have been presented at many key meetings including:
Pediatric Academic Societies, Toronto Canada 2018
Pediatric Academic Societies, Baltimore, Maryland 2019
Break the Cycle, Atlanta, Georgia, 2018
Midwest SPR, Chicago, Illinois, October 2019
American Academy of Pediatrics, NCE, New Orleans, LA, October 2019
Break the Cycle Atlanta, Georgia, 2019
We have fostered an appreciation and commitment to research through our trainees:
Abigail Whitney, Pritzker Medical School
Sydney Goldberg, Rochester University and Harvard University
Kathryn Thompson, Pritzker Medical School
Lily Considine, Wellesley College
Kendall Elue, Pritzker Medical School
Dr. Kayla Bates, University of Chicago
• 95% of parents report interest and availability of mobile technology to learn about their child’s health
• Using our web-application supports improvements in parenting quality of life measures in the NICU
• Parents with fewer resources, measured by both geo-coding and self report, have an increased improvement in quality of life using the PMY web app
• Parents of smaller, more fragile prematures actually sustain bigger improvements over time in quality of life compared to their more mature counterparts
• Improvements for parental quality of life is clinically significant for democratizing health to families facing socio-economic barriers to health.