PreeMe+You Hands On App
Preeme+You empowers families to take their babies home feeling prepared, cared for, and without delay. We help you tap into how your medical team is caring for your baby.
You learn how your medical team is taking care of your baby and using NICU medicine to help your baby go home faster. PreeMe+You harmonizes communication between parents and rotating NICU teams. This way, everyone is on the same page.
GET IN TOUCH!
Email us at firstname.lastname@example.org to learn more!
This web application is unique because it offers NICU parents a self-guided tool for locating their baby’s medical pathway and illness severity.
A Partner for Medical Teams
Putting yourself in the shoes of your medical team, you are both caring for the preemie and their families. When you update parents on their baby’s medical condition, your are not only communicating the baby’s illness severity, but you are also making sure that parents’ interpretation of what you are communicating is actually what you intend to communicate. At the same time, you also want to make sure that parents are emotionally cared for. All the while, you only have 15 minutes before you have to rush back and take care of another preemie and talk to another worried family.
Hands On helps guide parents and prepares them for a deeper and more nuanced conversation. By either working through yes and no operative clinical questions with families together or having families already on the same page, medical teams can spend time with families at the bedside in the way they need. Time is precious in the NICU, and Hands On empowers medical teams to go deeper in their explanations and care, minimizing “lost in translation.”
PreeMe+You: Social Benefit Mission and Collaborations
Our research program for PreeMe+You collaborates with two academic hospitals:
The University of Chicago and NorthShore Health Systems.
Dr. Bree Andrews is our PI at The University of Chicago Medical Center.
Bree Andrews, MD/MPH is a neonatologist practicing at a large urban university hospital who wants parents and their baby(ies) to have the best experiences in the NICU and beyond. She is leading a research initiative to improve parenting quality of life in the NICU by creating high-quality opportunities for parenting engagement. She also nurtures families once they go home in a regionally recognized follow-up clinic for medically complex patients. Bree joined PMY as the medical expert on NICU practice and care.
Dr. Marin Arnolds is our PI at NorthShore Health Systems.
Marin Arnolds is a Neonatologist and clinical ethicist at NorthShore University HealthSystem in Chicago, IL. Her research focuses on the experience of parenting in the neonatal intensive care unit and also improving communication between physicians and parents before, during and after their infant’s NICU admission. She is also a mother of two children, and is inspired by each baby and family’s strength during their NICU admission. Dr. Arnolds is passionate about improving quality of life for preemies and their families, and draws on her own experience as a mother in the NICU to to her daughter (born 9 weeks early) to support the families under her care.
How did PreeMe+You come about and who has already used it.
The PMY web application has been tested in approximately 100 families between the two hospitals.
Parents were asked to first reflect on the readiness for mobile technology to learn about their health conditions and care. The survey used was the FIFRE, commonly used to ask patients about how they get and use health information.
Second, parents were asked to track their quality of life as related to the health status of their babies using the Peds Quality of Life Impact Survey.
Our results have been presented at many key meetings including:
Pediatric Academic Societies, Toronto Canada 2018
Pediatric Academic Societies, Baltimore, Maryland 2019
Break the Cycle, Atlanta, Georgia, 2018
Midwest SPR, Chicago, Illinois, October 2019
American Academy of Pediatrics, NCE, New Orleans, LA, October 2019
Break the Cycle Atlanta, Georgia, 2019
We have fostered an appreciation and commitment to research through our trainees:
Abigail Whitney, Pritzker Medical School
Sydney Goldberg, Rochester University and Harvard University
Kathryn Thompson, Pritzker Medical School
Lily Considine, Wellesley College
Kendall Elue, Pritzker Medical School
Dr. Kayla Bates, University of Chicago
• 95% of parents report interest and availability of mobile technology to learn about their child’s health
• Using our web-application supports improvements in parenting quality of life measures in the NICU
• Parents with fewer resources, measured by both geo-coding and self report, have an increased improvement in quality of life using the PMY web app
• Parents of smaller, more fragile prematures actually sustain bigger improvements over time in quality of life compared to their more mature counterparts
• Improvements for parental quality of life is clinically significant for democratizing health to families facing socio-economic barriers to health.